Went to see my neurologist yesterday- epileptologist- to be specific. He’s been my doc for close to 20 years. I’ve never really been able to explain to him how my seizures felt, even after two observational studies where I stayed in a room for days with electrodes glued to my scalp and a camera trained on me 24/7. I couldn’t describe them to him yesterday either even when I was hit with a cluster of seizures while sitting in front of the doctor.
But that wasn’t the strangest part. I’ve had a series of MRIs over the years in an attempt to find an anomaly in my brain that may be the underlying cause of my seizures. Multiple scans have failed to locate any major abnormality.
Then yesterday, doc tells me my most recent scan showed damage in my left temporal lobe- likely due to a STROKE I suffered in my youth. What say you?? And why wasn’t this located earlier?
In any case, more invasive tests are now being planned (including placing electrodes directly on my brain) to determine if this is indeed the epilepsy source and map the exact location causing the seizures. A few additional tests remain, but a potential upcoming decision will be: do I want part of my brain surgically removed?